Kenan Gets Drawing Time: Kenan suffered optic atrophy many months ago, but there is more to drawing then seeing. Markers, crayons, pastels and pencils all have different sounds, different smells, different textures and feel very different making marks on the paper.
Friday, August 31, 2012
|We Lover Summer #9: Millennium Park -Chicago, 8/18/12.|
Even before having kids I admired Jaume Plensa's Crown Fountain for the immediate access it offers special needs children. In addition, the Air Show was taking place up above. Kenan took it all in with his usual alertness.
Saturday, August 11, 2012
Kenan makes his float debut on the East Coast (far left). Thank you to Jamie Davis and her beautiful daughter Addilyn (second from right, Krabbe diagnosed at 6 months, now 11-months-old) for raising awareness and advocating for expanded new born screening in Maine.
Wednesday, August 8, 2012
We Love Summer #7: The Hunter's Hope Family Symposium
After a long day of informative lectures on new born screening and Krabbe research, Kenan and I found a babbling brook to listen to on the grounds of the Holiday Valley Resort, NY. Although he lost his vision at 12 months, this photo distinctly portrays his receptive listening abilities and how attuned he is to his environment.