This is a photo of Kenan coming out of sedation from his diagnostic MRI. The images would prove inconclusive but it began the process of more than just explaining his symptoms, it led to a true understanding of our son. Two weeks later we would hear the words Krabbe Leukodystrophy for the first time. Although the disease has taken much in the past year, it has not taken him. And for that, our gratitude for all things Kenan overwhelms the words right out of me.
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