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Saturday, November 24, 2012

October 27th

Today's morning coffee: We have dragon, tiger and dolphin mom; how about Hulk Mom? Kenan spent part of his morning struggling to exhale: He'd take a breathe but the neurological signal to let it out was significantly delayed. Once he could, he'd cry and then it would start again. You do what you can to try to break through it and if all else fails and he is in too much duress there is morphine as a comfort med. My objective is to broaden the understanding of what Kenan and the kids of leukodystrophies are up against on a daily basis.

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