Written April 10, 2010

This is Kenan’s favorite position. It’s referred to as abnormal posturing, an adjective that remains difficult no matter how many time I hear it. It’s where he naturally goes and where he retreats when confronted with too much stimuli. Reasoning aside, as his mother and perhaps even as an artist, I love and admire the beauty of his body, the perfection of the arc, the strength of his muscles in sustaining the hold, his little, pointed toes. The irony is, that when relaxed, Kenan has very low muscle tone and can’t support his own body weight, another contradiction of the disease. I often refer to him as " My Little Baryshnikov".